Madison Shaw is an 15-year-old high school sophomore who believes that, “these years are just the prologue…”

Thus, her vision for Maddie’s Herd is to cultivate zeal that inspires and empowers people affected by Primary Immune Deficiency Disorders.

Maddie, as she likes to be called, has been always been an advocate for those in need. At the age of five, she canvassed the neighborhood collecting coins to send to the victims of the Indonesian Tsunami. By seven, she decided to donate her birthday gifts in the form birthday party supplies to children in foster care so they could celebrate their special days as well.

So, when she was diagnosed with a Primary Immune Deficiency Disorder (PI) at age 12, few who know her were surprised when she worked to raise funds for the ImmuneDeficiency Foundation (IDF) in order to increase awareness about what it’s like to live with PI. Marshalling the support of her classmates and community, a herd, Maddie’s Herd, came together. Since the age of 13, she’s raised nearly $20,000 with a goal of reaching $50,000 before she graduates from high school.

The once avid soccer player has channeled her energies towards impacting change in the lives of those living with PI and their families. Her efforts have broadened her experiences to include leading the inaugural IDF Zebra walk across the Brooklyn Bridge, NYC (Oct. 14); participating in Advocacy Day on Capital Hill and presenting the HR 460 bill to key representatives of Congress (May 14); offering motivational speeches to youth groups; and writing a book about getting blood work for children.

As a child living with a serious and chronic disease, she’s chosen to support the IDF along with Paul Newman’s The Hole in the Wall Gang Camp. Maddie has gained great resources and support from each group; bonded with very special friends; and declared her experiences with both organizations as, “life-changing.”

Today, Madison is working to build a better quality of life. She is an avid reader, budding artist, and curious photographer. Her future is bright, and she is hopeful about attending college, becoming a published author,and building a career that includes setting the music to accompany a movie’s storyline.

A fun fact to share is that Maddie is mad about puns. Thus, noting that while a group of Zebras can be referred to as a herd, it’s also known as a dazzle or a zeal. So, when developing the mission and tagline for Maddie’s Herd, it was only natural that it included the zeal behind the commitment to create change in the lives of families living with challenging health circumstances, especially PI.

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